Lunch in the Sky

ph6Today my little lunch bunch ate at Kozue, the Japanese restaurant at the top of the Park Hyatt hotel in Shinjuku.  It was a magnificent experience! The entire wall is windows looking out onto the city.  It wasn’t clear enough to see Fuji-san, but from our perch on the 40th floor, we could see straight through to Yokohama to the north.ph1

If the view wasn’t enough, the food was exquisite.  Served by beautiful young women in stunning kimono, the black lacquer bento box practically told a story in its intricate design and contents. The first course was a bit of egg tofu in a soy milk sauce, and a clear miso soup with a dumpling made of flounder, along with a taste of burdock and ginger in it. And then came the big, two-story box.  On the top there was katzuo (bonito) sashimi, and other small delicacies including a tiny squid, a shrimp head, a bit of egg rolled with cheese and a miniscule mound of sauteed spinach.  The bottom layer held some grilled mackerel, simmered vegetables and two small dumplings of shrimp and corn.  We paired it with a decadent glass of

The contents of the bento - both levels.

The contents of the bento – both levels.

Sancerre from the Loire Valley of France.

Mango tart and the sugary-est whipped cream I've ever tasted!

Mango tart and the sugary-est whipped cream I’ve ever tasted!

After we lingered over lunch itself, we repaired to the lounge on the forty-first floor where we had coffee and

dessert.  I chose a mango tart, but one friend had chiffon cake and the other had strawberry ice cream and

Close-up view of the intricate design of delicacies.

Close-up view of the intricate design of delicacies.

raspberry sherbet served in a large martini glass.  In the lounge, which had floor-to-ceiling windows, we were able to see more around the building to various other sites of the city, including all the way toward the Imperial Palace.

It was truly an unbelievable afternoon and I am privileged to have shared it with good friends. This was a celebratory lunch for our last meeting since one member is

Shrimp and corn dumpling

Shrimp and corn dumpling

repatriating shortly.  But if I know us, it’s just for now. As expats know, it’s never goodbye for good – it’s just for now – more of a see you later.  And it’s said with all the love we can muster.

Ask Me About My Bracelets – Alex and Ani

alexandaniIn recent months I’ve been walking around with a little jingle jangle on my wrist.  These bangle bracelets are not just for glamor, though; these bracelets have meaning.

The bracelets themselves are from a company called Alex and Ani.  Popular in the U.S., the company mission embraces values such as mindfulness, positive energy, sustainability and corporate consciousness. They pride themselves on supporting local business and manufacturing in the United States.  Every piece of their jewelry is accompanied by an explanation of its meaning and phrases of empowerment.  It is a great business model to support.

My first bracelet was a birthday gift.  My darling friend Bonnie’s daughter bought it for me.  Bonnie’s birthday is just a few weeks after mine, and Julia (age 15) bought the best friend bracelets for us.  (Bonnie is the friend who managed my cancer care from start to finish, you might remember) I treasure the meaning of the charm, the sentiment behind gift, and most of all, the friendship it represents.

My second bracelet I bought myself in November, just a few weeks after Dr. Siegel pronounced me cured of lymphoma.  It says “Live a Happy Life” on it.  The card it came with says that the bracelet embodies the spirit of courage, appreciation and choice. The full content says,  “Choose kindness, love, and joy.  Live life to the absolute fullest and open your mind up to spontaneous ideas.  Live fearlessly, be optimistic, and become blissfully aware of life’s gifts. Adorn yourself with the Live A Happy Life Charm to acknowledge the blessings in your existence and to be an inspiration to all.”

I don’t know about inspiration, but I do know that I strive to live every day acknowledging my blessings, for they are myriad. The jingle that I wear reminds me all the time that I am loved and even in times of challenge, I am strong and lucky.

So please, next time you see me, ask me about my bracelets; I’m proud to show them to you.

Teens and Parents and Communicaton

tin cansSome days are better than others with a teen and a tween in my home.  Last week I fought with Bailey about money, and with Sydney about her hair.  That doesn’t even scratch the surface of a few contentious evenings regarding schoolwork, reading, and Facebook chatting.  I don’t want to make it sound more difficult than it is, but it is definitely different.  I keep wondering at this phenomenon.  Different how? Different from when? It turns out that in my six months of absence due to successful cancer treatment, my kids changed as much as I did.

In the past two months since being reunited with them, I’ve had to get used to a high school freshman who is more likely to think about dates and ski trips than the video games over which he used to obsess.  (It’s not that he never plays anymore; he just doesn’t obsess.)  I now have a middle school daughter who gave up her colorful backpack in favor of a trendy Vera Bradley bag to be just like everyone else. I’ve had to get to know these kids all over again.  It turns out that Sydney loves a TV show called “Dance Moms” and has switched from playing the violin to playing the guitar because it’s an instrument she can sing with.  Bailey was on the freshman debate team this year and has discovered a passion for argument. He has buddies across ages and genders with whom he talks daily.

The boundaries are new; the thought processes are different. For the first few weeks, I was arguing with Bailey all the time until someone said to me, “Aimee, you have an entire lifetime to be on his case, but you only have three more years to build your relationship with him because once he’s out of the house, the building part is done.”  The words resonated: I have to think about I want Bailey to interact with me not just now, but in the future. How on earth was I going to achieve that balance between strengthening our relationship and being an authoritative parent?

Being a reader, I sought out writing to and for parents – often mothers – with teenagers.  A lot of it focuses on encouraging the mothers, validating their frustration and acknowledging what a tough time it is for the entire household.  But in general, having read parenting books, articles and blogs for all of my child’s life, I note that so many of the articles I found on the topic minister to desperation.  Sharing becomes more difficult because instead of cute little problems, our kids have bigger problems, ones that could potentially affect the rest of their lives.  That little saying about little kids and little problems turns out to be true!

My favorite piece, posted by my friend Carrie, is “Dear Lonely Mom of Older Kids.”  It’s a blog post that reminds parents that they’re not alone – and that parenting middle school and high school kids can be a lonely business.  Fewer people are willing to talk about the trials and tribulations of having older kids and the bigger problems it can cause in the family.  The piece is reassuring, comforting Moms and telling them that everything will turn out all right – eventually – and Moms will discover an inner strength they never knew they had in the process.

To that end, I also enjoyed the piece given to me by my friend Jacqueline from New York Magazine cleverly titled “The Collateral Damage of a Teenager.”  People never talk about how tough it is on the entire family when the cuddly kid turns into a sullen teen.  The piece is long but worth the read, covering topics such as parent conflict (with the teen and with each other) and resolution, sibling effect, and the most interesting part, about how and why the suffering ebbs but changes once a kid leaves for college.

These days my friends and I discuss our kids in light of behavior expectations, technology interruptions and distractions, and getting into college.  But we’re still talking.  One friend’s kid can’t pass math; one friend’s kid got on to the baseball team while another kid didn’t.  There are ups and downs and the only way to survive them is to derive support from those who have gone through it before or are going through it with you.  It doesn’t matter if your kid isn’t getting a 4.0, playing an instrument and five sports.  Parents need other parents who won’t judge or compare. We need to do that for each other.

And then there’s the communication with the kids themselves.  I have learned to listen more and talk less.  I have learned to ask questions before making demands.  I have learned to shoot off a quick text instead of calling if I want a response.  I shouldn’t say “I have learned” but rather, “I AM learning.” It all happens in fits and starts and some days are more successful than others. My children and I had to spend some serious time apart from each other and so we’re all interested in spending time together now.  That instinct might fade, but it might not. So far the kids are still communicating with me. What a gift.

Everyone grows and changes over time and it seems that the trick is to allow kids to do it safely and securely while hanging on to your own sanity – even if by a thread.  I have no magic solutions or ideas, but simply gratitude for the kids I have raised so far and the loving friends who laugh with me as we go through it all together.

The Grace of a Moment

CLately, instead of thinking about big things, I’ve been struck by little ones.  Here are a few examples:

Today Marc and I were driving to Bailey’s school to meet with his counselor.  There’s nothing wrong but this is our first child and we don’t know how to guide him, what he’s capable of doing, and what his options are, ergo, we asked for help.  I was sitting there in the car when it struck me.  It was this feeling of, for lack of a better word, shininess.  The sun was peeking out and burning off the morning fog; we were in one of the most exciting cities in the world; we were about to talk about our young teenager who, as of today, is still one of the “good” kids; and we were together doing all that.  The immediacy of it made me catch my breath a little with the sheer gratitude I felt.

The same thing happened last week.  Marc, the kids and I were sitting together at the dinner table doing nothing special except eating some yummy food when one of the kids brought up the idea of patents and patent protection (Marc is a patent attorney).  A very lively and interesting discussion ensued with the kids asking some very pertinent questions.  While Marc was answering one of these questions, that shiny feeling struck me.  I just sat back for a moment and watched the three of them interact, soaking it in and inking the picture of it in my mind more fully.

Over the weekend, we were out to dinner with some close friends at a wonderful Mexican restaurant in the trendy Marunouchi district of Tokyo. It was my first time venturing out to dinner and taking part in any sort of night life since being back. I had to stop and take a breath from the wonderful realization that struck me – I was sitting there in that hopping joint of a place, having a fantastic mojito, and surrounded by people who care deeply about me. How lucky is that?? (It really was a grand mojito, by the way)

I can list twenty-odd more little tiny events like that over the past week or ten days that have struck me deeply.  They were not moments of deep and lasting meaning.  On the contrary, they were moments of near-meaninglessness.  But they were moments. And they were my moments – little things that were important to me and maybe nobody else.  Two or so weeks ago I was so overwhelmed with the task of getting back to my life that I couldn’t even see these snippets. Progress.

Clearly my gratitude-o-meter is running overtime as I start to feel more and more normal – and get more and more in sync with my general life and the lives of the people around me.

I don’t know how long I’ll feel this stroke of grace, but I do hope it lasts a while.

A Funny Thing Happened on the Way out of the Chemo Room

Katie and me!

Katy and me!

Today, as I do the day after every chemotherapy session, I took myself back to the chemo room to get a shot of Neulasta, the wonder drug that boosts my white blood cells, which chemo kills off, rendering me immunosuppressed.  The Neulasta rebuilds the white blood cells within about 10 days, and in the meantime, I take a prophylactic antibiotic.

Katy, you may remember, is MY nurse, and she was her usual cheery self as we discussed podcasts and walking, and other inane things as she readied the shot and my arm.  The whole process took about ten minutes.

Just as Katy was walking away, another patient was walking toward us.  “What can I do for you Florence?” Katy asked.  Florence was an older, maybe 75-year-old, African American woman with not too many teeth in her head.  She limped slowly toward us, and anyone could see that with her beautiful hair and flashing eyes, she had once been a real spitfire.

“I want to talk to this young lady,” Florence said, motioning toward me.  She proceeded, with Katy’s help, to sit on a stool near my feet, as I was still sitting in one of the big chemo recliners.  Katy looked a little nervous, truth be told.

“Young lady,” Florence began, “I want you and Katy to hear this because it doesn’t get said enough.  I was diagnosed with the cancer about ten years ago and this here Katy lady has been here for me the whole time. Now I’m not always in the best mood when I come here, but Katy and these other ladies are always as nice and as sweet as can be.  It don’t get said enough and I want her to hear it, but Miss Katy is always patient with me even when I’m as ornery as can be.”

“She’s wonderful,” I replied, awestruck.

“She’s the best there is,” Florence agreed, “I don’t believe it’s a job for her to be here. I believe she was brought here for a reason and she is as wonderful and patient as can be even when I’m in a bad mood and hard to deal with.”

With that, Florence started to get up off the stool, and Katy again moved to hold her arm and help her with her two bags.  “You’re a nice young lady and you’re going to do just fine,” Florence pronounced.

I couldn’t reply that time.  She shuffled away with her cane, and I just sat there, dumbstruck.

“Are you okay?” Katy asked.

“I am,” I said and realized that there were tears flowing down my face.  Katy hopped over to the desk and got me a tissue box. She patted my back for a minute.  “Are you okay?” she asked again.

“I’m just feeling so lucky, so blessed,” I sobbed, unable to stop myself.  For all of the crap of cancer, there are a whole lot of wonderful people who’ve been watching over me from near and far.

“Well there’s a good energy coming off from you, Miss Aimee,” Katy said.

I finally got myself under control, stood and hugged Katy.  She patted my back again.  “See you next time,” she said with a smile and went to minister to her next lucky patient.  I hope she felt as good as both Florence and I meant her to.

I don’t know where Florence came from or who sent her to me when I’m feeling so crappy today, like I always do one day post-chemo, but I am grateful.  I know I’ll feel better tomorrow.  And I just know in my heart of hearts that Florence is right: I’m going to be okay.  I’m going to do just fine.

Conversations With Brian, or, What I’ve Learned So Far

CMy friend Brian Ledell is my favorite “Words With Friends” buddy.  Some people just play the game, which is an online version of Scrabble, but he and I chat a lot, too.

Last week I made a move on the board at about 3am.  “Insomnia,” I confessed on our chat.  When he awoke a few hours later and made his own move, he sympathized, telling me how much he hates when that happens to him.

Because I’ve known him for so long and because of our close relationship, I decided to put myself out there and just be honest with him.  The following conversation ensued:

Aimee: Confession: I’m taking something to quiet my brain at night.  I’m upbeat and positive all day.  Nights are tougher.

Brian: If I was going through what you’re going through I would be taking all the anti-anxiety drugs I could get the doctors to prescribe for me and would not feel the least bit bad about it.  Life is stressful enough in normal times.

Aimee: And this is why I love you – permission to be imperfect. I really work on that Superwoman mask but sometimes it just won’t stay on. I’m learning that not only is it okay to BE fallible; it’s okay to let people know you’re as flawed and faulty as everyone else.

Brian: You are too kind! I agree with you, though – asking for help is not an easy thing to do.  I think you’ve handled it very well. I’m proud to know you.

Aimee: I am so control freaky that I’m usually the helper, not the one asking for help. It’s a challenge, but I’m learning.  I’m learning a lot of things lately!

There are several important items in the subtext of that conversation, not the least of which is that Brian is an excellent listener.  For me, though, the crux of it is that I am learning.  Even when I’m going through this sh***y exercise called cancer, I continue to learn about myself, the people I love, and the world around me.  I’m reading a lot.  I’m continuing to write. I get messages from friends that brighten every day, and when I feel well, which, luckily, is many many days, I get to see several of those wonderful friends who live nearby – and sometimes even people who make treks of many miles to see me.  On most days I’m feeling quite lucky as I learn.

In order to maintain my own sanity and get through this, I have to stop trying to be perfect, express gratitude, and allow myself to ask for help when needed.  Learning to do these things has not been easy and I’m still not so good at it, but I’m working hard. They’re good lessons and I just hope that some of them stick with me beyond (God willing) cancer.

Cancer: an opportunity for a growth experience.  I’d rather not have the opportunity, but since I have no choice, I will take it.  Thanks, Brian.